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Posts tagged “Disability

The last day of the conference

Today’s the day! The last day that is, the final day of the conference I’m attending. The past few days I’ve talked about different aspects of conferences in general and I’ve touched on why virtual conferences are important, needed, and should be the norm. I’ve also talked about the difficulties presenting at a live conference when you have disabilities that make public speaking a challenge. Today I figure we can round out the topic by covering some of the good things about conferences and why you want to attend when you can.

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Presentation anxiety

Today is day two (of three) for the first conference of the year for me (more here). Presenting live is always a challenge and the difference between a good presentation and an okay presentation (any attempt is at least an okay attempt in my opinion) is a combination of planning, practicing, and luck. Of course there are things that can make this particularly difficult, for example one of the issues I have is aphasia, so while I can write normally (mostly), speaking can be a challenge. This is particularly apparent when I’m stressed, so presentations are a challenge.

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The first conference of the year

Today marks the start of the first conference of the year for me. This was the one that was unfortunately named far too similarly to the other conference I was awarded a slot to speak at (here). It’s three days long and is completely virtual (thankfully!) so I won’t be traveling just yet even though things are relaxing (far too early in my opinion). I figure today since I’ll be doing that we can discuss why I’m happy that we made the switch to virtual and why I am angry that it’s going to change soon.

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Caution: under pressure

For a third week in a row I’ve been instructed by my main-PI to give our lab virtual presentations on the work I’ve been doing. It’s been a point of stress now for almost a full month and doesn’t seem to be letting up any time soon. After every meeting I get a list of things I need to do before the following meeting and this time was no different, so today I guess we’re going to take a look at what exactly is next on my to-do list.

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Disability and Education

Per the VA, I am 100% totally and permanently disabled. I wasn’t always given that designation, I had to fight for it, go through years (yes, years and in fact almost a decade) of medical tests and several diagnoses before they finally acknowledged it. Thinking about how hard it was to get to this point, reminded me of an important issue, disability and education. The system isn’t accessible, but don’t worry that’s by design.

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I’m writing a book chapter!

Well talk about spoilers am I right? The title gives away the surprise for sure, but we can talk details since that’s probably why you’re even reading this. I get to write a book chapter, as in a actual published book you could get at the library, book chapter. Not something technical either, something more personal. Don’t worry I’ll explain.

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That time I was really bleeding and no one cared

Actual photo from that day! I was tweeting some of this story as it happened (at least the ER part) It was a serious storage closet and none of the stuff had locks on it because the door to the room was supposed to be locked.

Okay well it’s already been a busy day, but I promised to tell this story today so here we go. To quickly sum up the story, I filled a bathroom trash can full of blood, went to the emergency room, was shoved into a storage closet, then discharged. Welcome to the VA and fuck you for your service.

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Surgery time

Well today is the day. I just checked in and ready for surgery. For those of you who follow along, this isn’t the first surgery I’ve had. I’ve had two surgeries a year for the past four years. It’s a lot, but each one offers the promise of a slightly better life.

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Surgery in a pandemic

A seemingly endless hallway in a hospital. The floors have a shine to them and the yellow tint to the lighting makes it feel older than it probably is.
I took this photo today. It’s my favorite hallway in the VA because it just seems so endless. It goes the full length of the hospital (I think) and today it was empty. They are limiting the number of people who can come into the VA, which was a nice surprise, although it was still far too many people for my comfort.

I was planning on having surgery over the summer. I put it off because I didn’t want to go to go to the VA hospital. It’s a depressing place in the best of times, a not so friendly reminder that as a veteran we’re better off dead and the living are an afterthought. When the pandemic hit it was, and is, the last place I want to be. Yet, I can’t put it off anymore, so I’m having surgery.

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Day 308: Don’t be ableist

trump water

Believe it or not, there are some people who can’t even lift a hand, much less hold a glass of water.

For those of you just tuning into my corner of the internet, I’m a disabled vet. If you looked at me most days you wouldn’t know it, but not all disabilities are visible and my TBI, back issues, shoulder issues, knee issues, chronic pain, chronic fatigue, memory problems, PTSD, aphasia … I could keep going, but you get the idea. My disabilities are (mostly) not visible. So today I have a very simple request, don’t be ableist.

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Cancer survivors less likely to receive callbacks from potential employers

Cancer survivors less likely to receive callbacks from potential employers

Cancer survivors less likely to receive callbacks from potential employers

Job applicants who are cancer survivors are less likely to receive callbacks from potential retail employers than those who did not disclose their health history, according to a recent study by Rice University and Penn State University researchers.

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